Children's Hospice Week: Why urgent change is needed

Published on 12th June 2025
ChildrenFamily

Children’s Hospice Week: 16-22 June 2025

Children’s Hospice Week is the UK’s national week dedicated to raising awareness and support for children’s hospice services like ours here at Keech. Led by the charity Together for Short Lives, the campaign celebrates the incredible work being done to support children with life-limiting conditions—and highlights the urgent need for sustainable funding to protect these services.

At Keech Hospice, we care for children and families across Bedfordshire, Hertfordshire and Milton Keynes. Services like ours are under serious strain. Demand is rising. Needs are becoming more complex. And funding is falling dangerously short.

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What happens at a children’s hospice?

Children’s hospices are not places of sadness. They’re places of light, life and love. At Keech, we go far beyond medical care. We support the whole family—from symptom control and emotional support to helping create lifelong memories.

We’re there during the darkest times—the shock of a diagnosis, or the heartbreak of saying goodbye. But we’re there for the joyful moments too—a first swim, a music therapy session, a quiet cuddle in the sensory room. This is care that helps children live as well as possible, for as long as possible.

Keech Hospice Play Worker with Child Patient at Play Session

Families like Bianca and Breanna’s

Mum Bianca shares her story:

“When Breanna was born, she was perfect to me. Even when the uncertainty came, I held on to hope. Breanna was diagnosed with Microcephaly—and our journey became one of learning, strength and love.”

“Keech has been with us every step of the way—through hospital stays, seizures, and the good days too. When you’re living with a palliative child, every moment really does matter.”

Read Bianca’s full story here

The reality: Short lives can’t wait

There are an estimated 99,000 seriously ill children in the UK. Many of them are not receiving the care they need – especially at the end of life – due to:

  • Inconsistent government funding
  • Workforce and skills shortages
  • A postcode lottery in children’s palliative care

Together for Short Lives reports that up to two-thirds of children do not receive the standard of end-of-life care they need at home.

At Keech, just 30% of our funding comes from government sources. The remaining 70%—more than £5.5 million each year—must come from people like you. Our teams deliver complex, compassionate, round-the-clock care. But without urgent investment, this model is not sustainable.

How you can help

This Children’s Hospice Week, we’re asking you to take action. Because children like Breanna—and parents like Bianca and Kevaughn—deserve the very best care when every moment counts.

Make a donation

Whether it’s a one-off gift, a monthly donation, or playing our lottery—your support helps us be there for more families.

Donate now

Share the message

Help us spread the word and raise awareness.
Share this blog or your own hospice story using
#ChildrensHospiceWeek
#KeechCares

Get involved

  • Shop at one of our stores
  • Do a fundraising event
  • Volunteer your time
Find out how
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Every moment, and every pound, makes the difference

When a child’s life is short, there’s no time to wait. With your help, we can make sure every family facing the unimaginable receives the care, comfort and support they deserve.

Thank you